PET -Patulous Eustachian Tube Disorder

Patulous Eustachian Tube (PET)

Patulous Eustachian Tube (PET) Disorder

Samantha was diagnosed with Patulous Eustachian Tube (also known as PET) in October 2012.


After months of her primary care physician  telling her to wear a sweatband when she works out to prevent whatever  was causing her autophony  she began seeking answers elsewhere. After  12+ appointments with over 9 specialists a wonderful doctor was able to  determine what was wrong. They diagnosed her with PET. She was given the  name of one (of only 3) specialists in the US that could help her with  her condition. Once she was informed of the 11+ month waiting list for  the initial consultation she began looking at more natural and immediate  alternatives. So she began combining her knowledge of yoga, exercise,  weight loss, stress, anxiety, meditation, medical advice, and first-hand  experience of Patulous Eustachian Tube  to come up with ways to reduce the symptoms without surgery. Since then  she has managed to reduce the autophony to an infrequent intermittent  issue and has come to peace with her condition.


If you have PET no matter what area of the world you are in please feel free to email or contact her. Together we can figure out how to make this condition a little more bearable for each of us.
~Blessings to all.

FOR REFERENCE

Samantha's PET symptoms

1. Autophony in both ears (The  sounds inside her head are intensified so loud she can actually hear her  eyeballs move, and everything going on outside her head sounds like  Charlie Brown's teacher. When she speaks, even softly, it sounds like  she is yelling into a megaphone inside her head.)

2. Pain in both ears, pain stronger in the left ear

3. 24/7 Tinnitus since she was a young girl

4. Intense pressure & brief high pitch piercing  noise inside the head when pressure shifts in the room (High pitch sound  worse & different than tinnitus.)

5. Vertigo

6. Hearing loss in her left ear

7. Fullness feeling in her ears


Samantha's PET triggers
PET is a physical disorder in the eustachian tube of  the ear that causes it to stick/stay open. Resulting in the above  symptoms. There are certain "triggers" that can cause this to happen  more often than not.                                                             

1. Stress
2. Air pressure changes
3. Weight loss
4. Hormones from oral birth control
5. Heart rate increases above recommended cardio levels
6. Eating unhealthy (gluten, sugars, GMOs, MSG)
7. Cold temperatures
8. Alcohol


PET Patulous Eustachian Tube Website
PET Patulous Eustachian Tube Facebook Support Group
PET Patulous Eustachian Tube National Organization for Rare Disorders
PET Patulous Eustachian Tube Office of Rare Diseases Research