PET - Patulous Eustachian Tube Disorder

Samantha was diagnosed with Patulous Eustachian Tube (also known as PET) in October 2012.

After months of her primary care physician trying to convince her that her issue was just sweat in her ear, and telling her to wear a sweatband when she worked out to prevent her autophony she began seeking answers elsewhere.

After 12+ appointments with over 9 highly recommended ear & neurological specialists, a wonderful doctor was finally able to determine what was wrong, they diagnosed her with PET, and she was provided the names of the only 3 specialists in the US that could help her with her condition. 

When she tried to seek help with one specialist she was informed of the 11+ month waiting list for an initial consultation. She begged a receptionist at another office to help her, and she was able to make it to a cancellation appointment with another specialist, who's wife also had PET, but he had no long term solutions at that time. The only thing he could do, aside from short-term solution surgeries, was officially diagnose and confirm Samantha had PET. 

So, Samantha began looking at more natural and immediate alternatives. She began combining her knowledge of yoga, exercise, weight loss, nutrition, recipe creation, stress relief, anxiety, meditation, medical advice, and first-hand experience of Patulous Eustachian Tube to come up with ways to reduce the symptoms without the surgeries that result in even worse long-term issues.

Since then she has managed to reduce the autophony to an infrequent intermittent issue and has come to an emotional, mental, and physical peace with her condition.

If you have PET no matter what area of the world you are in please feel free to email or contact her and say hi. Maybe together we can figure out how to make this condition a little more bearable for each of us.
~Blessings to all

Samantha's PET symptoms

1. Autophony in both ears (The  sounds inside her head are intensified so loud she can actually hear her  eyeballs move, and everything going on outside her head sounds like  Charlie Brown's teacher. When she speaks, even softly, it sounds like she is yelling into a megaphone inside her head.)

2. Pain in both ears, pain stronger in the left ear

3. 24/7 Tinnitus since she was a young girl

4. Intense pressure & brief high pitch piercing  noise inside the head when pressure shifts in the room (High pitch sound worse & different than tinnitus.)

5. Vertigo

6. Hearing loss in her left ear

7. Fullness feeling in her ears

Samantha's PET triggers
PET is a physical disorder in the eustachian tube of  the ear that causes it to stick/stay open. Resulting in the above  symptoms. There are certain "triggers" that can cause this to happen  more often than not.

Samantha removed or reduced everything listed here to find relief.

1. Stress
2. Air pressure changes
3. Weight loss
4. Hormones from oral birth control
5. Heart rate increases above recommended cardio levels
6. Eating unhealthy (gluten, sugars, pesticides, GMOs, MSG)
7. Cold temperatures
8. Alcohol

Some Links You Might Be Interested In

PET Patulous Eustachian Tube Facebook Support Group
PET Patulous Eustachian Tube Office of Rare Diseases Research